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Lisa's Journal

Meet Lisa, a nurse caring for her 83-year-old mother, as she shares her day-to-day experiences as a caregiver.







Introduction


Writing a journal is an interesting process. Like the reality it mirrors, things are ever-changing. One day good, perhaps the next not so good, the thing we can depend on is time moves on.

I am 51 years old. Married for 28 years, I am a wife, mother of three, daughter, sister and a nurse. I have cared for patients hospitalized with cancer, taught nursing for 25 years and worked in the emergency room. The vast majority of my nursing experience revolves around children. Most of my teaching is in the area of pediatrics.

Over the last 15 years, however, with increasingly more responsibility overseeing the care of my mother who is 83, I have learned a great deal about the needs and care of our aging population. As my mother ages, issues such as poor hearing and failing sight reconstruct the relationship she has with the outside world. The issue of incontinence, however, is one that dictates what she thinks about herself and even what she believes she can and cannot do. Since my mother had a stroke about a decade ago, the challenge to keep her as strong and independent as possible has been one to which my family is committed. It is never easy. But it is definitely worth the time and care that must be put into it.

My passion for health has communication as its cornerstone. Although I find it much easier to verbalize my feelings and beliefs than to write them, the chance to begin this journal is exciting to me. I hope that this will be as rewarding for those who share in this process as it is for me to engage you in it.

My journal will oftentimes deal with patience – the need for it, my lack of it. Don’t get me wrong. I have plenty of patience. I use it all the time. It, however, is not a bottomless pit. Interestingly, when I need it most with my mom is the time when I seem to lose it. Then, for all the good I feel I have done I am left with the sense of shame and guilt for not being able to have it (the patience) longer or utilize it better. It is at that moment when she will identify my lack of it!

That brings me back to the communication piece. The times as a caregiver when I use the power of listening and sensitive feedback are the times I find a greater satisfaction with the role as helper and daughter.

When you think about it, just combining the roles “helper and daughter” places one in a potential bind. No mother likes to think of being dependant on one’s child. The situation is potentially stressful from the start. At the end of the day, a caregiver must feel good about the work that has been provided. Otherwise the frustration that takes hold will erode the relationship and leave both parties burnt out. I make it a daily goal to have my interactions protect Mom’s sense of dignity while trying to support her function in the real world where she needs assistance and guidance.

It is around the issue of incontinence where we have the most trouble. Some days my goal is achieved; some days it’s not. Always, my interaction is based on my love and concern for her well-being..


 
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Lisa's Next Journal Entry.
 


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